Wednesday, August 12, 2009

Mondays - My new day "off"

Since my last post, I have really been thinking about the balance of trying to just appreciate Nate for who he is and making sure I'm taking care of all of his needs. I've had some really sweet time with him this week and am looking for ways to stay in the present.

What I've realized is that therapies, research and making appointments are what really pull me away from this great place with Nate. So, I've decided to try to take a day "off" from DS stuff each week. I think it will be Mondays - those will be my days to just really focus on who Nate is and appreciate his sweet, developing personality. I will not be distracted by therapies, rushing to appointments, reading other blogs, researching, etc. I will simply love on Nate.

One other thing I am going to try is to have one set time to make DS-related phone calls each week. So, I'll just make a list and make all of my appt calls on one day.

I'm excited to try this new approach and hope it will help me to start my week off by remembering that Nathan is a baby, not a syndrome! (I heard that from someone at the conference and thought it was great!)



  1. Hello Danielle-

    I just happened upon your blog. Your "day off from Down syndrome" idea is a great one that I think I will steal. I am also in Oregon (Portland) and my little guy, Anthony, is 5 months old. I would love to connect with you if you'd be interested- here is our blog:

    PS- Nate is an absolute little charmer!

  2. I think that's a GREAT idea! I was recently thinking that this fall I'd love to do a class with Brennan....just for fun...with typical I would have with my other kids. Like you, I don't want all of our alone time to be therapy time.

  3. Brilliant! Isn't it amazing how the simplest ideas are the best ones?

  4. Great idea!
    I just started reading a well written and interesting book, inspired by you and Jen (and Eunice Shriver, too!)
    You've probably already heard of it but just caught my eye at the library and apparently it is hot off the press.
    The Year My Son and I Were Born -- Kathryn Soper.
    You are in my thoughts as I read about this familiy's journey with DS.